Overview:
After my sons 5th birthday party we came home to play with all his new toys. That night he started complaining of a headache and said his legs felt sleepy, I treated the headache with Tylenol and we went to bed. The next morning he woke up completely paralyzed from neck down (c3) we are almost 2 years out with some recovery, this diseases is rare and there is only 2 doctors that really treats it.
Symptoms:
Legs feeling sleepy, headache, legs tingling, lose of bowl, and urine retention they can hit all the sudden or over a course of weeks or months.
Testing/Diagnosis:
Mri, spinal tap
Treatment:
High dose steroids, IVIg infusion, plasma pherisis
Resources:
John Hopkins TMA association and Kennedy Kriger institute in Baltimore
Contributed by MOM Anna Martin
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