- Some of the known symptoms with RDS include:
- slow digestion
- weight loss
- failure to thrive
- swallowing problems and poor oral motor skills
- distended abdomen
- excessive gas or inability to pass gas
- reflux or GERD
- chronic constipation or diarrhea
- unable to tolerate feeding without distention.
- laboratory chemistries, unbalanced electrolytes
Treatments: Some medications may help with RDS, such as different types of anti bacterials to help kill the bacteria along the intestinal wall. Feeding tubes (often J tubes in order to bypass the stomach completely) can help with the feed intolerance. Often doctors will suggest/prescribe elemental formula's. An elemental formula is one that is already broken down as it would be during normal digestion. There are many different types of elemental formulas, some are more broken down than others. There are medications that can be used for treating these diseases, for example metoclopramide or cisapride, but these usually are of benefit in the milder cases. Because of the rarity of these diseases the management of patients usually is turned over to "sub - subspecialists," gastroenterologists with special expertise in disorders of motility.
We went through so much trying to figure out why our preemie, Aizen, wouldn't eat. We could not figure out why his tummy was so distented. He was put through so many tests and lab work, all coming back negative. The doctors finally diagnosed Dysmotility Syndrome. Even though they are not completely sure about the diagnosis, they are treating Aizen for this syndrome. So far treatment has been successful.
Contributed by MOM Ashley Lembert