Monday, May 5, 2014

Developmentally Cognitively Delayed

Overview:
9 years ago, my daughter Grace was born at 24 weeks. She was a micro-preemie. She had a tracheostomy,ventilator, oxygen, and feeing tube. Today, she is mechanically free, but does have DCD. She is in third grade, and is developmentally delayed for her age. Grace still has induced asthma at times, due to her respiratory colds.

Symptoms:
Grace was on born at 24 weeks, she had severe chronic lung disease. Being born 16 weeks prematurely, brought many health issues for our micro-preemie, along with years later, of being diagnosed with having developmental cognitive delays. Grace was very hyper and impulsive for years. She had a hard time focusing on one task at a time. Today with the work of her teachers and at home, she is doing very well, and learning how to read and do basic math skills. We have an IEP plan through the district that Today, she has an IEP plan at school, that each year we try to achieve.

Testing/Diagnosis:
For years we worked with OT, PT and speech in the home, and during her pre-school years. Between working with early intervention and the school district, we learned that Grace had Developmental Cognitive Delays. She had a learning disability which she would learn differently than most kids her age.

Treatment:
Grace learns differently at school in her special education classes. She has goals set through her IEP plan through the school district.

Resources:
Because our family endured so much, I felt compelled to share our story and how we coped through the years with my book, “Life with Grace”. htt://www.lifewithgracebook.com

Personal Story:
graceMy daughter Grace was born 16 weeks prematurely. She had Chronic Lung Disease. She also had a multiple of many other medical surgeries throughout our long 9 months that we endured in the hospital. She came home with a tracheostomy, ventilator, oxygen, and feeding tube. Today, I can happily share that she is mechanically free, and is trying to get along, just like any other third grader out there. She is surely a miracle, and has survived through some extreme circumstances. Because our family endured so much through the years, I felt compelled to share out story through my book, “Life with Grace”. It’s a resource book intended for parents of premature babies. My book is about hope, and how we managed to move forward after such a life changing experience. Grace is a true fighter, and even though she has some struggles to deal with in her daily life, she is a walking example of what a miracle is all about. My book is a way for me to say thank you, with all the blessings we have been given.
http://www.lifewithgracebook.com,
http://www.facebook.com/lifewithgracebook

Contributed by MOM Jennifer Schwertfeger,  Author of <a href="http://www.infor@lifewithgracebook.com">Life with Grace</a>


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